What are Neuroendocrine Tumors or NETs?
Neuroendocrine tumours or NETs, is an umbrella term for a group of relatively uncommon cancers originating in the neuroendocrine cells of numerous organs.
The term neuroendocrine refers to the dual features of these cells which are a cross between nerve cells and hormone-producing endocrine cells.
Characteristics of these tumours can vary, depending on where they are located. NETs are considered rare. However since NETs are often slow-growing and generally associated with prolonged survival, there are many more people living with the disease.1
NETs can be difficult to diagnose because symptoms can vary widely from patient to patient and NETs are often mistaken for other conditions such as irritable bowel syndrome (IBS), Crohn’s disease, peptic ulcer diseases or gastritis.
NETs are more common in people over the age of 60 and symptoms may include stomach pain, changes in bowel habits and loss of appetite.
Like any cancer, NETs can change your life and it’s normal to feel overwhelmed, confused, afraid and even angry about your condition. Your family and friends may feel the same way.
There are NET Support Groups for patients and their caregivers all over the world. These groups can provide you with information and a safe place to share your feelings and challenges.
Looking for a NET support group?
There are NET support groups all around the world.
- Ramage J, Ahmed A, Ardill J, Bax N, Breen JD, Caplin ME, Corrie P, Davar J, Davies A H, Lewington V, et al. Guidelines for the management of gastroenteropancreatic neuroendocrine (including carcinoid) tumours (NETs). Gut 2012;61: 6─32.